I have leant to cherish, embrace and admire the RARE essence of being beautiful amidst anything
Hey there, I'm Zanele People admire me because I am very humble, loving, kind hearted and a friendly individual. I have a condition named...
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Feb 17, 2021
My rare disease doesn't define me.
Hi everyone, Im Camilla. Having Rare Diseases isn't all that makes me different. As much as I've been through, I still fight the good...
Feb 17, 2021
Wegener has got nothing on me.
I am Chané Botha and I am a Wegener Warrior I’ve had this disease for many years but what this journey has taught me is how to be brave,...
Feb 17, 2021
The fear with rare conditions stems from not knowing what to expect each day...
I am Tové and I am a qualified Biokineticist. Some people say that I am different due to my patience, kindness and always wanting to look...
Feb 17, 2021
Even on the day our son gained his angel wings, we still saw a warrior in him...
We are the parents of a very special child Tumisho. He was born at Netcare Femina on the 27 October 2010 ( Born in the year when South...
Feb 16, 2021
Despite my disability I have always been treated as normal
I am Janine Sokwane a 39-year black female I was born with a motor neuron immune disease called Spinal Muscular, for short it’s a...
Feb 9, 2021
There's always light at the end of every tunnel
My name is Sumaya Gasnola. I am 62 years old. Just after my 50th birthday I started getting very bad knee pain and swelling in my knees...
Feb 9, 2021
Rare is strength. Rare rarely gives up and rarely fails
Hello, I am a Rare Woman chosen by the Lord to be Nabeelah’s mom. I am a teacher by profession and in my classroom I always loved the boy...
Feb 9, 2021
We can still live our best lives with Rare Diseases SA's help
My name is Matthew May, I am 7 years old and going to Grade 2 (in spite of having mum and dad home school me through this pandemic.) I...
Feb 9, 2021
We live with uncertainty daily, coloured with hope for a miracle.
Hi There This is our story… One November morning in 2019, my daughter woke up, screaming and crying that she has stomach pain, she is...
Feb 9, 2021
A walking miracle, living a beautiful life.
Hello, my name is Kerry Walsh. I was born on the 22/10/1997, I was born in a set of fraternal twins. I have SMA (spinal muscular atrophy)...
Feb 9, 2021
Let’s live to inspire others!
Hi there! My name is Tové and I am a qualified Biokineticist. Some people say that I am different due to my patience, kindness and always...
Feb 9, 2021
I Believe In Miracles
I stay positive. My motto is never give up. Mommy told me never to give up on a cure and to keep praying one will come.
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