My rare disease doesn't define me.
Hi everyone, Im Camilla. Having Rare Diseases isn't all that makes me different. As much as I've been through, I still fight the good...
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Feb 17, 2021
Wegener has got nothing on me.
I am Chané Botha and I am a Wegener Warrior I’ve had this disease for many years but what this journey has taught me is how to be brave,...
Feb 17, 2021
The fear with rare conditions stems from not knowing what to expect each day...
I am Tové and I am a qualified Biokineticist. Some people say that I am different due to my patience, kindness and always wanting to look...
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